Rabin Martin is guiding the work of a global commission of medical experts and patient advocates who are passionate about the rights of women living with a chronic disease to make informed decisions about their treatment during pregnancy and breastfeeding.
Women who are being treated for a chronic disease often do not have the information they need to make informed decisions about their treatment throughout their reproductive journey. The lack of data on the impact of medicines on pregnancy and breastfeeding has been a persistent challenge, with serious negative effects on a woman’s right to information about her health.
UCB has a longstanding commitment to support women of childbearing age who have a severe chronic disease. The company wanted to make a significant contribution to closing the information gap for women.
Rabin Martin worked with UCB to establish a global, multidisciplinary commission to examine the challenge of limited data on pregnancy and chronic disease and make action-oriented recommendations. We helped define the commission’s charge and core principles and facilitate its deliberations to arrive at ambitious, yet practical solutions that respond to women’s needs and preferences.
BRIDGE (Better Research, Information and Data Generation for Empowerment) is taking a woman-centered approach and developing a call to action for a variety of stakeholders: health care providers, health systems, researchers, patient advocacy groups, and others. Co-chaired by UCB, a patient advocate and a regulatory expert, the commission’s members are leading chronic disease physicians, women’s health advocates and patients.
The commission plans to publish its report with recommendations in early 2024, with the goal of improving the lives of women with chronic conditions.
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