Shire establishes global commission to end the diagnostic odyssey for children with a rare disease

17 April 2018
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Rabin Martin is excited to support Shire in establishing the Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease, a new effort co-chaired by Shire’s CEO Flemming Ornskov, Microsoft CMO, Simon Kos, and EURORDIS CEO, Yann Le Cam.

On average, it takes five years for rare disease patients, half of whom are children, to receive a correct diagnosis. By drawing attention to a major challenge in the rare disease field, and leading the charge to confront it, Shire and its partners will be making a valuable contribution to improve the lives of patients, caregivers, and physicians.

We have been Shire’s strategic partner in conceptualizing the Global Commission based on our exploration of what it would take to reduce the time to diagnose rare diseases. Rabin Martin will continue to provide strategic and program management support to help ensure the success of this pioneering Commission whose members include patient advocates, technology experts, geneticists, and researchers. The goal is to develop a roadmap to guide the rare disease field in accelerating the time to diagnosis, set for early 2019.

A press release on the Global Commission can be found here.

“Rabin Martin has been an invaluable partner of Shire in thinking through what our company can do to make a long-reaching, high impact difference for the rare disease community and address the diagnostic challenge for patients living with a rare disease. I am impressed by how far we have come in such a short time, and grateful for their strategic counsel and program management support.  I am looking forward to what we can achieve together.” — Linn Parrish, Head of Corporate Responsibility at Shire

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